Families coping with dementia know how challenging it can be. In the United States, Alzheimer's disease and related dementias affect about 5.8 million people, which means countless others are serving as caregivers for these loved ones.
Alzheimer's disease is a significant cause of dementia, but other factors can also contribute. For instance, long-term alcohol abuse can cause dementia, as experienced by Bailey, who has been sharing her story on TikTok.
Earlier this year, Bailey’s father, Scott, was diagnosed with Wernicke-Korsakoff syndrome, a condition caused by a deficiency in vitamin B1 due to alcohol misuse. He has been living with Bailey for the past six months. Through her videos, Bailey provides insights into daily life with her father, capturing the highs and lows of managing his condition and his memory loss.
Bailey’s videos illustrate that dementia manifests differently in each person. Scott experiences excellent and challenging days, but his ability to express his feelings despite confusion is remarkable.
It’s tough not to be recognized by a parent, and finding ways to communicate with a loved one who doesn’t remember you can be daunting. Bailey shared a poignant moment with her father, highlighting their enduring emotional bond, even if his memories don’t align.
In one video, Scott expresses discomfort when Bailey calls him “Dad.” He acknowledges his feelings for her and his awareness of her significance but struggles with the notion of being her father. He also voices concerns about hurting her feelings. Bailey responds with understanding, offering to address him as Scott if that’s more comfortable, making for a touching exchange.
“Some days are easier than others,” Bailey wrote in her caption. “I miss you, Dad, but I love you very much, Scott.”
Witnessing Bailey’s family navigate both the difficulties and the moments of healing from Scott's illness offers valuable perspective. Those in similar situations might find solace in their approach to communication, and those unfamiliar with dementia can gain insight into its realities.
Each person's experience with dementia is unique, and what works for one may not work for another. However, there is much to learn from observing how others manage such a challenging situation with grace, patience, and love.
Bailey has noted some positive changes in Scott’s behavior, mentioning that he has become more pleasant and emotionally responsive. Her videos capture moving moments where Scott expresses remorse for past actions.
“People change, and we believe in second chances. As sad as this has been, it’s a second chance for all of us,” Bailey reflected.
Bailey's approach—immersing herself in his world, guiding him gently when possible, and accepting his reality to avoid confusion—is a profound example of communicating with someone who has dementia. It’s a challenging task, but she handles it with exceptional skill.
We appreciate Bailey’s willingness to share her family's journey. She offers others a glimpse into the experience of loving someone through dementia and reassuring those in similar situations that they are not alone.